Living with Pityriasis rotunda
A rare skin condition with round, scaly, pigmented patches, mostly on the trunk, arms and legs.
Understanding Pityriasis rotunda
The patches mainly occur on the trunk, arms and legs. There are two types. Type 2 is not linked to internal disease or cancer. GARD says type 1 most often occurs with liver and stomach cancer, so doctors may check for related conditions.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. It describes these signs:
- Round, scaly patches
- Darker patches of skin
- Patches on the trunk, arms and legs
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown, but it may be a variant of ichthyosis vulgaris, a dry, scaly skin condition.
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pityriasis rotunda.
Explore research for Pityriasis rotunda
Explore actively recruiting Pityriasis rotunda studies with HealthSpark.
Find actively recruiting studies for Pityriasis rotunda with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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