Living with Pityriasis lichenoides
A skin condition with small, raised pink spots that come in groups; it is not contagious and often clears on its own.
Understanding Pityriasis lichenoides
It is not contagious. The acute form (PLEVA) begins suddenly and may itch or burn. The milder, longer-lasting form (PLC) is less irritating. Spots usually appear on the trunk, buttocks, arms and legs. A rare severe form comes with high fever. Most cases clear on their own within one to several months.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. It describes these signs:
- Small, raised pink spots in groups
- Spots on the trunk, buttocks, arms and legs
- Itching or burning (acute form)
- Spots that fade, then new ones may appear
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is not known. Ideas include a reaction to a bacterial or viral infection, or an unusual immune response to an unknown trigger.
Also known as: parapsoriasis en gouttes
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pityriasis lichenoides.
Explore research for Pityriasis lichenoides
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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