Living with Pineal parenchymal tumor of intermediate differentiation
A rare tumor of the pineal gland in the brain, of intermediate grade, that can affect people of any age.
Understanding Pineal parenchymal tumor of intermediate differentiation
GARD describes it as a WHO grade II or III tumor of intermediate grade that can affect all ages. Under the microscope it is made of sheets or large lobules of similar cells. The cells show mild to moderate changes and low to moderate rates of cell division.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Brain Tumor Society
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: pineal parenchymal tumor of intermediate differentiation (morphologic abnormality); pineal parenchymal tumour of intermediate differentiation (morphologic abnormality)
Patient organizations
- National Brain Tumor SocietyPineal parenchymal tumor of intermediate differentiation · United States
You are more than your diagnosis
Perspectives from people navigating life with Pineal parenchymal tumor of intermediate differentiation.
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