Living with Pili annulati
A hair condition in which hair has light and dark bands, which may make it break more easily.
Understanding Pili annulati
People may describe their hair as "striped" or as having silvery beads. It usually affects 20 to 80 percent of scalp hair but can affect facial and body hair too. Affected hair may break more easily. It is harder to see in people with dark hair. It often begins in childhood.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Hair with light and dark bands
- Fine hair
- Hair that breaks easily
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include genetic specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Genetic specialists (geneticists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Skin Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says changes in genes cause this condition but doesn't name a gene. It runs in some families in an autosomal dominant pattern, and some cases occur with no family history.
Also known as: ringed hair; ringed hair disease
Patient organizations
- Children's Skin Disease FoundationSkin diseases · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pili annulati.
Explore research for Pili annulati
Explore actively recruiting Pili annulati studies with HealthSpark.
Find actively recruiting studies for Pili annulati with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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