Living with Pigmented purpuric lichenoid dermatitis of Gougerot and Blum
A rare skin condition that causes long-lasting reddish-brown spots, most often on the lower legs, sometimes with itching.
Understanding Pigmented purpuric lichenoid dermatitis of Gougerot and Blum
Tiny blood vessels (capillaries) become leaky and let red blood cells escape into the skin, which leaves reddish-brown spots. The spots can appear anywhere but are most often on the lower legs. They may slowly spread to cover more skin, or they may fade on their own without permanent damage.
Signs & symptoms
Symptoms vary from person to person. GARD lists these:
- Long-lasting reddish-brown spots
- Spots most often on the lower legs
- Intense itching in some people
- Spots that spread slowly or fade on their own
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the spots appear because tiny blood vessels leak red blood cells into the skin. It doesn't describe a cause or inheritance for this condition yet.
Also known as: familial capillaritis; familial pigmented purpuric eruption; pigmented purpuric eruption; schamberg disease; schamberg purpura
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Pigmented purpuric lichenoid dermatitis of Gougerot and Blum.
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