Living with Pericardial mesothelioma
A very rare cancer of the thin lining around the heart, linked to asbestos.
Understanding Pericardial mesothelioma
It makes up less than 1% of malignant mesothelioma cases. It is most often diagnosed between ages 50 and 70. About 60% of cases occur in men. Symptoms are often general, so diagnosis is usually late, when the disease is extensive.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists and heart and blood vessel specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Heart and blood vessel specialists (cardiologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Mesothelioma Guide
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says this cancer is related to asbestos exposure. It doesn't describe other causes.
Also known as: malignant mesothelioma (disease) of pericardium; malignant mesothelioma of pericardium; malignant mesothelioma of the pericardium; malignant pericardial mesothelioma; pericardial malignant mesothelioma; pericardium malignant mesothelioma (disease)
Patient organizations
- Mesothelioma GuidePericardial mesothelioma · United States
You are more than your diagnosis
Perspectives from people navigating life with Pericardial mesothelioma.
Explore research for Pericardial mesothelioma
Explore actively recruiting Pericardial mesothelioma studies with HealthSpark.
Find actively recruiting studies for Pericardial mesothelioma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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