Living with Pediatric acute-onset neuropsychiatric syndrome
An autoimmune condition in children with a sudden start of mental health and nervous system symptoms at the same time.
Understanding Pediatric acute-onset neuropsychiatric syndrome
The symptoms show up together and come on quickly. GARD says the cause is unknown, but the symptoms may follow a recent infection.
Signs & symptoms
GARD doesn't list specific symptoms, but the summary describes a mix of psychiatric and neurologic symptoms:
- Sudden changes in mood or behavior
- Nervous system symptoms that start at the same time
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
ASPIRE, Neuroimmune Foundation and Northwest PANDAS/PANS Network may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: ASPIRE, Neuroimmune Foundation, Northwest PANDAS/PANS Network
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with ASPIRE and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the cause is unknown and still under study. Symptoms may follow a recent infection.
Also known as: pans
Patient organizations
- ASPIREPediatric acute-onset neuropsychiatric syndrome · United States
- Neuroimmune FoundationPediatric acute-onset neuropsychiatric syndrome · United States
- Northwest PANDAS/PANS NetworkPediatric acute-onset neuropsychiatric syndrome · United States
- PACE FoundationPediatric acute-onset neuropsychiatric syndrome · United States
- PANDAS NetworkPediatric acute-onset neuropsychiatric syndrome · United States
- International OCD FoundationPediatric acute-onset neuropsychiatric syndrome · United States
You are more than your diagnosis
Perspectives from people navigating life with Pediatric acute-onset neuropsychiatric syndrome.
Explore research for Pediatric acute-onset neuropsychiatric syndrome
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Find actively recruiting studies for Pediatric acute-onset neuropsychiatric syndrome with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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