Living with PDA1
A heart condition in newborns in which a blood vessel needed before birth stays open.
Understanding PDA1
Before birth, this vessel carries blood from the lung artery to the aorta so the baby can get oxygen without using the lungs. After birth, it should close. If it stays open, it is called PDA and, left untreated, can cause problems such as high blood pressure in the lungs and heart failure. It can happen in babies born early, and may close by itself or with medicine.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
PDA is usually not considered a genetic disorder, but it can happen again in about 5% of siblings, which suggests a genetic part. GARD lists this form as autosomal recessive, which means a child inherits a changed copy of the gene from each parent.
Also known as: patent ductus arteriosus 1; patent ductus arteriosus, susceptibility to
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with PDA1.
Explore research for PDA1
Explore actively recruiting PDA1 studies with HealthSpark.
Find actively recruiting studies for PDA1 with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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