Living with Parkinson disease 3, autosomal dominant
A form of Parkinson disease, a long-term nervous system condition that affects movement, balance, and sometimes thinking.
Understanding Parkinson disease 3, autosomal dominant
It affects several brain regions, especially an area called the substantia nigra. Often the first symptom is a tremor, usually starting on one side of the body. Symptoms slowly worsen over time. It can also affect mood and thinking, and raise the chance of dementia. Onset after age 50 is called late-onset, and before age 50 is early-onset.
Signs & symptoms
Symptoms vary from person to person. GARD describes these:
- Trembling at rest (tremor)
- Stiff arms, legs, and torso
- Slowed movement (bradykinesia)
- Poor balance and coordination
- Depression or hallucinations in some people
- Changes in memory and thinking
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Dysautonomia International, Parkinson & Movement Disorder Alliance and Parkinson's Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Dysautonomia International, Parkinson & Movement Disorder Alliance, Parkinson's Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Dysautonomia International and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: park3; parkinson disease 3; parkinson disease 3, autosomal dominant lewy body
Patient organizations
- Dysautonomia InternationalParkinson disease 3, autosomal dominant · United States
- Michael J. Fox Foundation for Parkinson's ResearchParkinson disease 3, autosomal dominant · United States
- Parkinson & Movement Disorder AllianceParkinson disease 3, autosomal dominant · United States
- Parkinson's FoundationParkinson disease 3, autosomal dominant · United States
You are more than your diagnosis
Perspectives from people navigating life with Parkinson disease 3, autosomal dominant.
Explore research for Parkinson disease 3, autosomal dominant
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