Living with Panuveitis
A rare eye condition with swelling and irritation throughout the middle layer of the eye.
Understanding Panuveitis
The uvea includes the iris, ciliary body, and choroid. The swelling can also reach the lens, retina, optic nerve, and the gel inside the eye (vitreous). It can reduce vision and may lead to blindness. It can occur at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD says they may include:
- Red eyes
- Eye pain
- Blurred vision
- Sensitivity to light
- Decreased vision
- Floaters
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include eye disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Ocular Immunology and Uveitis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Eye disease specialists (ophthalmologists)
- Expert care
- Expert lists: Ocular Immunology and Uveitis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Ocular Immunology and Uveitis Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
In many people the exact cause is unknown. It can sometimes occur along with other eye conditions or with diseases or infections that affect other parts of the body.
Also known as: diffuse uveitis; inflammation of the whole uveal tract; panuveitis (disease); total uveitis
Patient organizations
- Ocular Immunology and Uveitis FoundationPanuveitis · United States
You are more than your diagnosis
Perspectives from people navigating life with Panuveitis.
Explore research for Panuveitis
Explore actively recruiting Panuveitis studies with HealthSpark.
Find actively recruiting studies for Panuveitis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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