Living with Pancreatoblastoma
A rare cancer of the pancreas, found most often in children, that can cause a belly lump, pain, and vomiting.
Understanding Pancreatoblastoma
It is a cancer of the cells that make digestive juices in the pancreas. Symptoms are general and can include a lump in the belly, vomiting, belly pain, yellowing of the skin, and weight loss or poor growth. GARD lists the onset as childhood and adulthood.
Signs & symptoms
Symptoms are not specific to this condition. GARD lists these among the most common:
- Belly pain
- Bloated belly
- Vomiting
- Diarrhea
- Weight loss
- Calcium spots in the pancreas
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists and digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Digestive system specialists (gastroenterologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Pancreatic Cancer Action Network and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: pancreatoblastoma (morphologic abnormality)
Patient organizations
- Pancreatic Cancer Action NetworkPancreatoblastoma · United States
- American Cancer SocietyPancreatic tumors · United States
You are more than your diagnosis
Perspectives from people navigating life with Pancreatoblastoma.
Explore research for Pancreatoblastoma
Explore actively recruiting Pancreatoblastoma studies with HealthSpark.
Find actively recruiting studies for Pancreatoblastoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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