Living with Ovarian gynandroblastoma
A rare ovarian tumor from hormone-making cells that usually grows slowly and is often found early.
Understanding Ovarian gynandroblastoma
It can occur at any age but is more common in children and young adults. Under the microscope it has two cell types, Sertoli cells and granulosa cells. Doctors find most tumors while they are still limited to the ovary. It may cause symptoms related to higher estrogen or androgen (male-type hormone) levels. These tumors can grow large but usually grow slowly and are not aggressive.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Based on its summary, features may include:
- Symptoms from high estrogen
- Symptoms from high androgens (male-type hormones)
- A large ovarian growth, in some people
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists, gynecologic cancer specialists, maternal-fetal medicine specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Gynecologic cancer specialists (gynecologic oncologists); Maternal-fetal medicine specialists (pregnancy-related); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Ovarian Cancer Coalition and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet. It develops from the hormone-making cells of the ovary.
Also known as: gynandroblastoma; gynandroblastoma of ovary; gynandroblastoma of the ovary
Patient organizations
- National Ovarian Cancer CoalitionOvarian gynandroblastoma · United States
- Ovarian Cancer Research AllianceOvarian gynandroblastoma · United States
- American Cancer SocietyGynecological tumors · United States
- SHARE: Cancer SupportGynecological tumors · United States
You are more than your diagnosis
Perspectives from people navigating life with Ovarian gynandroblastoma.
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