Living with Omsk hemorrhagic fever
A virus infection spread by tick bites or animal contact, mainly in parts of western Siberia, with fever, severe muscle pain, and bleeding problems.
Understanding Omsk hemorrhagic fever
People can be infected from tick bites, contact with blood, feces, or urine of infected animals, contaminated water, lab exposure, or the milk of infected goats or sheep. No person-to-person spread has been documented. First symptoms can begin 3 to 8 days after exposure. In rare cases it causes hearing loss, hair loss, or behavior changes.
Signs & symptoms
Symptoms vary from person to person. GARD describes these in its summary:
- Chills and fever
- Nausea and headache
- Severe muscle pain
- Vomiting and other stomach problems
- Bleeding problems
- Hearing loss or hair loss (rare)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The Omsk hemorrhagic fever virus (OHFV) causes this infection, most often passed on by tick bites. GARD says it occurs mainly in the Omsk, Novosibirsk, Kurgan, and Tyumen regions of western Siberia.
Also known as: ohf - omsk hemorrhagic fever
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Omsk hemorrhagic fever.
Explore research for Omsk hemorrhagic fever
Explore actively recruiting Omsk hemorrhagic fever studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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