Living with Nongerminomatous germ cell tumor
A cancerous tumor, found in the brain, chest, or abdomen, that starts from cells meant to form sperm or eggs.
Understanding Nongerminomatous germ cell tumor
They are commonly found in the pineal gland in the brain, in the mediastinum (the middle of the chest), or in the abdomen. They are often large and tend to spread faster than the other type of germ cell tumor, called seminoma. Possible early signs include chest pain and breathing problems.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Based on its summary, possible early signs include:
- Chest pain
- Breathing problems
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Cancer Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
These tumors start from cells that were meant to form sex cells (sperm or eggs). GARD doesn't describe a further cause.
Also known as: germ cell tumor, nonseminomatous; non-dysgerminomatous germ cell tumor; non-dysgerminomatous germ cell tumour; non-germinomatous germ cell tumor; non-germinomatous germ cell tumour; non-seminomatous germ cell tumor
Patient organizations
- American Cancer SocietyNongerminomatous germ cell tumor · United States
- Cancer Hope NetworkNongerminomatous germ cell tumor · United States
- CancerCareNongerminomatous germ cell tumor · United States
- Pediatric Brain Tumor FoundationNongerminomatous germ cell tumor · United States
You are more than your diagnosis
Perspectives from people navigating life with Nongerminomatous germ cell tumor.
Explore research for Nongerminomatous germ cell tumor
Explore actively recruiting Nongerminomatous germ cell tumor studies with HealthSpark.
Find actively recruiting studies for Nongerminomatous germ cell tumor with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Nongerminomatous germ cell tumor studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Nongerminomatous germ cell tumor
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Nongerminomatous germ cell tumor experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.