Living with Nipah virus disease
A virus infection, spread from animals, that causes fever, tiredness and brain inflammation (encephalitis), sometimes with breathing problems.
Understanding Nipah virus disease
It is described as a recently discovered zoonotic disease, meaning one that spreads from animals to people. It involves fever, general symptoms of illness, and encephalitis, sometimes along with a respiratory illness. GARD lists onset as any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Fever and headache
- Tiredness (fatigue) and muscle aches
- Brain inflammation (encephalitis)
- Dizziness (vertigo)
- Nausea and vomiting
- Seizures and tremor
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The Nipah virus causes this disease. GARD describes it as zoonotic, meaning it spreads from animals to people.
Also known as: infection caused by nipah virus; nipah encephalitis; nipah fever; nipah virus infectious disease
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Nipah virus disease.
Explore research for Nipah virus disease
Explore actively recruiting Nipah virus disease studies with HealthSpark.
Find actively recruiting studies for Nipah virus disease with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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