Living with Myospherulosis
A rare condition of the face and jaw in which a lump of inflamed tissue forms, usually after surgery and often with no symptoms.
Understanding Myospherulosis
It most often happens because of a reaction between blood cells and oils, especially petrolatum-based antibiotic ointment used after surgery. It is most often found in the sinuses and jaws, but can occur anywhere in the body. It is typically found by chance as a soft tissue swelling without symptoms. GARD lists onset in adulthood.
Signs & symptoms
GARD doesn't list specific symptoms. The summary says it is typically found by chance as a swelling without symptoms.
- Soft tissue swelling, often without symptoms
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include ear, nose, and throat specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Ear, nose, and throat specialists (otolaryngologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Skin Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It most often results from a reaction between leaked red blood cells and oils, in particular petrolatum-based antibiotic ointment used after surgery.
Also known as: spherulocytosis; subcutaneous spherulocystic disease
Patient organizations
- Children's Skin Disease FoundationSkin diseases · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Myospherulosis.
Explore research for Myospherulosis
Explore actively recruiting Myospherulosis studies with HealthSpark.
Find actively recruiting studies for Myospherulosis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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