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Living with Myeloid sarcoma

A rare tumor made of immature blood cells that grows in bone or in places outside the bone marrow.

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Understanding Myeloid sarcoma

Myeloid sarcoma is a tumor mass made of myeloblasts or other immature myeloid (blood-forming) cells.

The tumor grows in places outside the bone marrow (extramedullary sites) or in the bone. It can happen at any time in life.

Signs & symptoms

GARD doesn't list specific symptoms for this condition yet.

Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.

Diagnosis

Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.

Care & treatment

Care team: Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
Expert care: Ask about multidisciplinary care centers for rare conditions
Treatment: GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
Research: Clinical trials and observational studies may be options. See the research section below.

General information, not medical advice. Your care team makes the decisions.

Everyday life

Living with a rare condition is easier with support.

Connect with Blood Cancer United and other patient organizations
Keep notes on symptoms, changes and questions for appointments
Ask about patient registries that help research
Look into financial aid and travel resources for care visits

Bring these questions to your next doctor visit

Where is the tumor and how was it found?

Which tests will guide my treatment?

Which specialists should be on my care team?

Quick facts

Symptoms usually startany time in life

GARD doesn't describe a cause for this condition yet.

Blood

Also known as: chloroma; extramedullary myeloid tumor; extramedullary myeloid tumour; myeloid sarcoma, disease; sarcoma, myeloid, malignant

Patient organizations

Blood Cancer UnitedBlood or bone marrow disease · United States
HealthTree FoundationBlood or bone marrow disease · United States

Source: NIH GARD · Myeloid sarcomaGARD ID 12763 · GARD page updated September 2026 · Plain-language summary by Know Rare; editorial review pending. General information, not medical advice.

You are more than your diagnosis

Perspectives from people navigating life with Myeloid sarcoma.

Explore the Myeloid sarcoma blog

Broader resource

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Explore research for Myeloid sarcoma

Explore actively recruiting Myeloid sarcoma studies with HealthSpark.

HealthSpark

Find actively recruiting studies for Myeloid sarcoma with HealthSpark. Share your city to explore research near you.

Recruiting studies from ClinicalTrials.gov
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Eligibility is confirmed by the study team

I can help you find recruiting Myeloid sarcoma studies. Enter a ZIP code, address or city below and I'll look within 50 miles.

Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.

HealthStoryfor Myeloid sarcoma

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