Living with Myelodysplastic/myeloproliferative disease
A rare group of blood and bone marrow diseases that have features of both low and high blood cell production.
Understanding Myelodysplastic/myeloproliferative disease
The bone marrow makes too many white blood cells, with features of two types of disease. The myelodysplastic part leads to too few healthy blood cells. The myeloproliferative part means too many of one or more cell types. The main types are chronic myelomonocytic leukemia, juvenile myelomonocytic leukemia, and atypical chronic myeloid leukemia. Others that don't fit are called unclassifiable.
Signs & symptoms
Symptoms vary from person to person. GARD lists these:
- Fever
- Tiredness
- Weight loss
- Easy bruising or bleeding
- Weakness
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Aplastic Anemia and MDS International Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Expert lists: Aplastic Anemia and MDS International Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Aplastic Anemia and MDS International Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Patient organizations
- Aplastic Anemia and MDS International FoundationMyelodysplastic/myeloproliferative disease · United States
- American Cancer SocietyMyelodysplastic/myeloproliferative disease · United States
- Blood Cancer UnitedMyelodysplastic/myeloproliferative disease · United States
- Cancer Hope NetworkMyelodysplastic/myeloproliferative disease · United States
- HealthTree FoundationBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Myelodysplastic/myeloproliferative disease.
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