Living with Mycoplasma encephalitis
A rare brain infection and swelling caused by Mycoplasma bacteria, often after a respiratory infection.
Understanding Mycoplasma encephalitis
Nervous system symptoms start suddenly. These can include changes in alertness, seizures, headaches, and behavior changes. Before that, people may have general signs such as fever, nausea, vomiting, and tiredness. Many have had a respiratory infection such as pneumonia. It can happen at any time in life.
Signs & symptoms
GARD doesn't list a symptom list, but the summary describes these features:
- Changes in alertness or awareness
- Seizures
- Headaches
- Behavior changes
- Fever
- Nausea and vomiting
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and seizure and epilepsy specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Epilepsy Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Seizure and epilepsy specialists (epileptologist)
- Expert care
- Expert lists: Epilepsy Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Epilepsy Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is caused by a bacterial infection with Mycoplasma pneumoniae. People often have a history of a respiratory infection such as pneumonia.
Also known as: encephalitis caused by mycoplasma pneumoniae; mycoplasma pneumoniae caused infectious encephalitis; mycoplasma pneumoniae encephalitis; mycoplasma pneumoniae infectious encephalitis
Patient organizations
- Epilepsy FoundationEpilepsy · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Mycoplasma encephalitis.
Explore research for Mycoplasma encephalitis
Explore actively recruiting Mycoplasma encephalitis studies with HealthSpark.
Find actively recruiting studies for Mycoplasma encephalitis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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