Living with Mucosa-associated lymphoma
A slow-growing type of non-Hodgkin lymphoma that most often starts in the digestive tract.
Understanding Mucosa-associated lymphoma
It is made of small B-lymphocytes (a type of white blood cell). The digestive tract is the most common site, but it can also involve the lung, head and neck, area around the eye, skin, thyroid, and breast. Stomach involvement is linked with H. pylori infection. It usually occurs in adults.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- B-cell lymphoma
- Fatigue and fever
- Weight loss
- Heavy sweating
- Nausea and vomiting
- Anemia
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with HealthTree Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says gastric involvement is associated with H. pylori infection. GARD does not list a specific gene.
Also known as: extranodal marginal zone b-cell lymphoma; extranodal marginal zone b-cell lymphoma of mucosa-associated lymphoid tissue; extranodal marginal zone b-cell lymphoma of mucosa-associated lymphoid tissue (malt-lymphoma); extranodal marginal zone lymphoma of mucosa-associated lymphoid tissue; immunocytoma; lymphoma of mucosa-associated lymphoid tissue
Patient organizations
- HealthTree FoundationMucosa-associated lymphoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Mucosa-associated lymphoma.
Explore research for Mucosa-associated lymphoma
Explore actively recruiting Mucosa-associated lymphoma studies with HealthSpark.
Find actively recruiting studies for Mucosa-associated lymphoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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