Living with Mononeuritis multiplex
A painful nerve condition in which two or more separate nerves are damaged, often linked to another health condition.
Understanding Mononeuritis multiplex
It affects sensation and movement, and the damage is uneven and does not happen all at once. It is associated with other conditions such as diabetes, vasculitis, amyloidosis, rheumatoid arthritis, and lupus. It may also be linked to infections such as Lyme disease and hepatitis A, among others.
Signs & symptoms
GARD doesn't list a set of symptoms for this condition. Its summary describes painful nerve damage that affects sensation and movement.
- Pain from nerve damage
- Changes in feeling
- Muscle weakness
- Damage in at least two separate nerve areas
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says it is associated with, but not limited to, other conditions such as diabetes, vasculitis, amyloidosis, and rheumatoid arthritis.
Also known as: multiple mononeuropathy
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Mononeuritis multiplex.
Explore research for Mononeuritis multiplex
Explore actively recruiting Mononeuritis multiplex studies with HealthSpark.
Find actively recruiting studies for Mononeuritis multiplex with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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