Living with Microcystic adnexal carcinoma
A rare skin tumor that most often grows on the face, head, or neck and rarely spreads to distant parts of the body.
Understanding Microcystic adnexal carcinoma
It usually grows in the middle of the face but can occur on other parts of the body. It is often first noticed as a bump or a yellowish spot on the skin. It frequently grows into nearby tissues, so it is considered an invasive cancer. It rarely spreads to distant parts of the body (metastasizes).
Signs & symptoms
GARD doesn't list a set of symptoms for this condition. Its summary describes how it may first appear:
- A bump on the skin
- A yellowish spot on the skin
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
The Skin Cancer Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: The Skin Cancer Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with The Skin Cancer Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: eccrine epithelioma; eccrine epithelioma of skin; malignant syringoma; microcystic adnexal carcinoma of skin; sclerosing sweat duct carcinoma; syringoid eccrine carcinoma
Patient organizations
- The Skin Cancer FoundationMicrocystic adnexal carcinoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Microcystic adnexal carcinoma.
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- Eligibility is confirmed by the study team
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