Living with Mesangiocapillary glomerulonephritis, type II
A kidney condition, also called dense deposit disease, that causes protein and blood in the urine and swelling.
Understanding Mesangiocapillary glomerulonephritis, type II
Main symptoms come from the kidneys not working well. They often include protein in the urine, blood in the urine, less urine, low blood protein, and swelling in many body areas. It starts in childhood. Most cases occur by chance with no family history.
Signs & symptoms
GARD doesn't list a separate symptom list, but its summary describes these:
- Protein in the urine
- Blood in the urine
- Less urine than usual
- Low blood protein
- Swelling in many parts of the body
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include genetic specialists and kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
NephCure Kidney International may keep lists of experts for this condition.
Care & treatment
- Care team
- Genetic specialists (geneticists); Kidney specialists (nephrologists)
- Expert care
- Expert lists: NephCure Kidney International
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with NephCure Kidney International and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It can have genetic or non-genetic causes. Changes in the C3 and CFH genes can cause it. It can also result from genetic risk and environmental triggers, or from autoantibodies that block immune system proteins.
Also known as: dense deposit disease; dense deposit disease / membranoproliferative glomerulonephritis type ii; mcgn (mesangiocapillary glomerulonephritis) type ii; membranoproliferative glomerulonephritis type 2; mesangiocapillary glomerulonephritis type 2; mpgn 2
Patient organizations
- NephCure Kidney InternationalMesangiocapillary glomerulonephritis, type II · United States
- American Association of Kidney PatientsMesangiocapillary glomerulonephritis, type II · United States
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Mesangiocapillary glomerulonephritis, type II.
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