Living with Mediastinal yolk sac tumor
A cancer from germ cells that starts in the chest area between the lungs.
Understanding Mediastinal yolk sac tumor
It is not in the ovaries or testes. People can have breathing difficulty, chest pain, fever, and swelling from pressure on a large vein (superior vena cava syndrome).
Signs & symptoms
GARD doesn't list a separate symptom list, but its summary describes these:
- Breathing difficulty
- Chest pain
- Fever
- Swelling from pressure on a large vein (superior vena cava syndrome)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: endodermal sinus neoplasm of mediastinum; endodermal sinus neoplasm of the mediastinum; endodermal sinus tumor of mediastinum; endodermal sinus tumor of the mediastinum; endodermal sinus tumour of mediastinum; endodermal sinus tumour of the mediastinum
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Mediastinal yolk sac tumor.
Explore research for Mediastinal yolk sac tumor
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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