Living with Maturity-onset diabetes of the young
A group of inherited forms of diabetes with high blood sugar, usually starting before age 30.
Understanding Maturity-onset diabetes of the young
These forms typically begin before age 30 but can occur later. High blood sugar comes from the body making too little insulin. The types differ by their genetic cause. The most common are HNF1A-MODY (MODY3) and GCK-MODY (MODY2).
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- High blood sugar
- Glucose intolerance
- Abnormal oral glucose test
- High hemoglobin A1c
- Low insulin level
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include genetic specialists and hormone specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Genetic specialists (geneticists); Hormone specialists (endocrinologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
Different types are caused by changes in different genes. HNF1A, GCK, HNF4A, and HNF1B are among those named. It is inherited in an autosomal dominant way, so a change in one copy of the gene can be enough.
Also known as: mason-type diabetes; maturity onset diabetes mellitus in young; maturity onset diabetes of the young; maturity-onset diabetes of the young (disease); mody; mody - maturity onset diabetes of young
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Maturity-onset diabetes of the young.
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