Living with Malignant germ cell tumor of ovary
A rare ovarian cancer that starts in egg-forming cells, often showing up in the teen years.
Understanding Malignant germ cell tumor of ovary
It is often found on one side only when diagnosed. It usually shows up in the teen years, though it can happen at a variety of ages.
Signs & symptoms
GARD doesn't list a separate symptom list, but its summary describes these signs:
- Mass in the pelvis
- Fever
- Vaginal bleeding
- Sudden, severe belly pain (acute abdomen)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists, gynecologic cancer specialists, maternal-fetal medicine specialists and women’s reproductive health specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Cancer specialists (oncologists); Gynecologic cancer specialists (gynecologic oncologists); Maternal-fetal medicine specialists (pregnancy-related); Women’s reproductive health specialists (obstetricians / gynecologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Ovarian Cancer Coalition and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: malignant germ cell neoplasm of ovary; malignant germ cell neoplasm of the ovary; malignant germ cell tumor of the ovary; malignant germ cell tumour of the ovary; malignant ovarian germ cell neoplasm; malignant ovarian germ cell tumor
Patient organizations
- National Ovarian Cancer CoalitionMalignant germ cell tumor of ovary · United States
- Ovarian Cancer Research AllianceMalignant germ cell tumor of ovary · United States
- American Cancer SocietyGynecological tumors · United States
- SHARE: Cancer SupportGynecological tumors · United States
You are more than your diagnosis
Perspectives from people navigating life with Malignant germ cell tumor of ovary.
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