Living with Malignant fibrous histiocytoma
A soft tissue cancer (sarcoma) that can occur in muscles and other soft tissues, at a variety of ages.
Understanding Malignant fibrous histiocytoma
GARD describes it by the look of its cells, which vary in shape and size. The same cancer is also called malignant fibrous histiocytoma. It can happen at a variety of ages.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Soft tissue sarcoma (cancer of soft tissue)
- Fever
- Muscle abnormality
- Lower limb abnormality
- Abnormal lining of the abdomen (peritoneum)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include bone and joint specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
The Skin Cancer Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Bone and joint specialists (orthopedists or orthopedic surgeons); Cancer specialists (oncologists)
- Expert care
- Expert lists: The Skin Cancer Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with The Skin Cancer Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: adult malignant fibrous histiocytoma; adult unclassified pleomorphic sarcoma; adult undifferentiated pleomorphic sarcoma; fibrous histiocytoma, malignant; fibrous histiocytoma, malignant (morphologic abnormality); fibroxanthoma, malignant
Patient organizations
- The Skin Cancer FoundationMalignant fibrous histiocytoma · United States
- American Cancer SocietyMalignant fibrous histiocytoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Malignant fibrous histiocytoma.
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