Living with Lymphoma, Hodgkin, X-linked pseudoautosomal
A rare blood cancer related to classic Hodgkin lymphoma, which starts in B cells.
Understanding Lymphoma, Hodgkin, X-linked pseudoautosomal
Classic Hodgkin lymphoma is a cancer that starts in B cells, a type of white blood cell. The cancer cells, called Reed-Sternberg cells, are typically large and have two nuclei.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Blood Cancer United and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: hodgkin disease susceptibility, pseudoautosomal
Patient organizations
- Blood Cancer UnitedLymphoma, Hodgkin, X-linked pseudoautosomal · United States
- Lymphoma Research FoundationLymphoma, Hodgkin, X-linked pseudoautosomal · United States
You are more than your diagnosis
Perspectives from people navigating life with Lymphoma, Hodgkin, X-linked pseudoautosomal.
Explore research for Lymphoma, Hodgkin, X-linked pseudoautosomal
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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