Living with Localized lichen myxedematosus
A rare skin condition with small, firm, waxy bumps in a few areas of the body.
Understanding Localized lichen myxedematosus
It causes small, firm, waxy bumps (papules) in only a few places on the body. It is the localized, less severe form, also called papular mucinosis. People are typically otherwise healthy. GARD notes it typically does not require therapy.
Signs & symptoms
GARD doesn't list a separate symptom list. Its summary describes this sign:
- Small, firm, waxy bumps on the skin
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Skin, hair, and nail specialists (dermatologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Children's Skin Disease Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The cause is unknown. It is commonly associated with monoclonal gammopathy, and has also been reported with bone marrow cancers, HIV infection, hepatitis C, and exposure to toxic oil and contaminated L-tryptophan.
Also known as: focal lichen myxedematosus; localized lichenoid myxedema
Patient organizations
- Children's Skin Disease FoundationSkin diseases · United States
Broader rare-disease groups
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Localized lichen myxedematosus.
Explore research for Localized lichen myxedematosus
Explore actively recruiting Localized lichen myxedematosus studies with HealthSpark.
Find actively recruiting studies for Localized lichen myxedematosus with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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