Living with Liposarcoma
A cancerous tumor that starts in fat tissue, often in the thigh, leg, or belly.
Understanding Liposarcoma
It often occurs in the thigh, leg, behind the knee, or in the abdomen, and less often in the head and neck. Most people have no symptoms until the tumor is large and presses on nearby tissues or organs, causing tenderness, pain, or problems with function. It can occur at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Firm lump under the skin
- Tenderness or pain once the tumor is large
- Problems with function of nearby organs or tissues
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Sarcoma Foundation of America may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists)
- Expert care
- Expert lists: Sarcoma Foundation of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Sarcoma Foundation of America and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: fibroliposarcoma; lip sarcoma; liposarcoma, malignant; malignant lipomatous tumor; sarcoma of lip
Patient organizations
- Sarcoma Foundation of AmericaLiposarcoma · United States
- American Cancer SocietyLiposarcoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Liposarcoma.
Explore research for Liposarcoma
Explore actively recruiting Liposarcoma studies with HealthSpark.
Find actively recruiting studies for Liposarcoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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