Living with Lipoid nephrosis
A kidney disease, also called minimal change disease, that damages the kidney's filters and is the most common cause of nephrotic syndrome in children.
Understanding Lipoid nephrosis
It is the most common cause of nephrotic syndrome in children. Nephrotic syndrome includes protein in the urine, low protein levels in the blood, high cholesterol and triglycerides, and swelling. It also raises the risk of blood clots. Other signs include weight gain and foamy urine.
Signs & symptoms
GARD doesn't list a separate symptom list. Its summary describes these signs:
- Protein in the urine
- Swelling
- Foamy urine
- Weight gain
- Low blood protein levels
- High cholesterol and triglycerides
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
NephCure Kidney International may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: NephCure Kidney International
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with National Kidney Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The cause is unknown, but it may occur after an allergic reaction or infection.
Also known as: light negative glomerulonephritis; lipid nephrosis; mcd - minimal change disease; mcgn - minimal change glomerulonephritis; mcn - minimal change nephropathy; minimal change disease
Patient organizations
- National Kidney FoundationLipoid nephrosis · United States
- NephCure Kidney InternationalLipoid nephrosis · United States
You are more than your diagnosis
Perspectives from people navigating life with Lipoid nephrosis.
Explore research for Lipoid nephrosis
Explore actively recruiting Lipoid nephrosis studies with HealthSpark.
Find actively recruiting studies for Lipoid nephrosis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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