Living with Limbic encephalitis
A group of autoimmune brain conditions that cause inflammation in memory-related brain areas.
Understanding Limbic encephalitis
The main sign is severe trouble with short-term memory. Symptoms can also include confusion, psychiatric symptoms, and seizures. They usually develop over weeks or months, but may develop over a few days. It is often linked to an underlying tumor, but some cases never have one found.
Signs & symptoms
GARD doesn't list a symptom list for this condition. Its summary describes these features:
- Severe short-term memory problems
- Confusion
- Psychiatric symptoms
- Seizures
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
International Autoimmune Encephalitis Society may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: International Autoimmune Encephalitis Society
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with International Autoimmune Encephalitis Society and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is an autoimmune condition. It is often linked to an underlying tumor (paraneoplastic), but some cases have none (non-paraneoplastic).
Also known as: limbic encephalopathy
Patient organizations
- International Autoimmune Encephalitis SocietyLimbic encephalitis · United States
- Encephalitis411Limbic encephalitis · United States
You are more than your diagnosis
Perspectives from people navigating life with Limbic encephalitis.
Explore research for Limbic encephalitis
Explore actively recruiting Limbic encephalitis studies with HealthSpark.
Find actively recruiting studies for Limbic encephalitis with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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