Living with Ligneous conjunctivitis
A rare condition that causes thick, woody growths on the lining of the eyelids and sometimes other tissues.
Understanding Ligneous conjunctivitis
The growths are yellow, white, or red and most often form inside the eyelids. They may also affect the cornea and pupil and can lead to vision loss. A systemic form can affect the mucous membranes of the voice box, nose, airways, vagina, cervix, and gums.
Signs & symptoms
GARD doesn't list a symptom list for this condition. Its summary describes these features:
- Inflamed eyes (conjunctivitis)
- Thick, woody growths inside the eyelids
- Vision loss if the cornea is involved
- Growths in the nose, throat, or gums (systemic form)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Autoimmune Association may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Autoimmune Association
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Autoimmune Association
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The cause is unknown. Autosomal recessive inheritance has been suggested in some cases. It is sometimes associated with congenital plasminogen deficiency.
Patient organizations
- Autoimmune AssociationLigneous conjunctivitis · United States
You are more than your diagnosis
Perspectives from people navigating life with Ligneous conjunctivitis.
Explore research for Ligneous conjunctivitis
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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