Living with Leiomyosarcoma
A rare cancer of smooth muscle cells that most often starts in the uterus or abdomen.
Understanding Leiomyosarcoma
It can spread through the bloodstream and affect the lungs, liver, blood vessels, or other soft tissue. It is most often found in the uterus or abdomen. It can occur at a variety of ages.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet.
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Leiomyosarcoma Support & Direct Research Foundation, National LeioMyoSarcoma Foundation and Sarcoma Foundation of America may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists)
- Expert care
- Expert lists: Leiomyosarcoma Support & Direct Research Foundation, National LeioMyoSarcoma Foundation, Sarcoma Foundation of America
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Leiomyosarcoma Support & Direct Research Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The exact cause is not known. GARD says genetic and environmental factors appear to be involved.
Also known as: leiomyosarcoma - not uterine; leiomyosarcoma (excluding uterine leiomyosarcoma); leiomyosarcoma, malignant; leiomyosarcomas
Patient organizations
- Leiomyosarcoma Support & Direct Research FoundationLeiomyosarcoma · United States
- National LeioMyoSarcoma FoundationLeiomyosarcoma · United States
- Sarcoma Foundation of AmericaLeiomyosarcoma · United States
- American Cancer SocietyLeiomyosarcoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Leiomyosarcoma.
Explore research for Leiomyosarcoma
Explore actively recruiting Leiomyosarcoma studies with HealthSpark.
Find actively recruiting studies for Leiomyosarcoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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