Living with Laryngeal papillomatosis
A condition in which small tumors called papillomas grow in the voice box, often causing hoarseness.
Understanding Laryngeal papillomatosis
Symptoms usually begin with hoarseness or a voice change. Some people have trouble breathing if the papillomas block the airway. The tumors vary in size, can grow very quickly, and often grow back even when removed.
Signs & symptoms
Symptoms vary from person to person. GARD says people may have:
- Hoarseness
- Voice changes
- Trouble breathing (dyspnea)
- Growths in the voice box that grow back
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Recurrent Respiratory Papillomatosis Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Recurrent Respiratory Papillomatosis Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Recurrent Respiratory Papillomatosis Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is caused by two types of human papillomavirus (HPV), called HPV 6 and HPV 11.
Also known as: laryngeal papilloma; laryngeal papillomas; recurrent laryngeal papillomatosis
Patient organizations
- Recurrent Respiratory Papillomatosis FoundationLaryngeal papillomatosis · United States
- HPV AllianceLaryngeal papillomatosis · United States
- Voice Health InstituteLaryngeal papillomatosis · United States
You are more than your diagnosis
Perspectives from people navigating life with Laryngeal papillomatosis.
Explore research for Laryngeal papillomatosis
Explore actively recruiting Laryngeal papillomatosis studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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