Living with Kluver-Bucy syndrome
A rare behavior condition linked to damage to the front of the temporal lobes of the brain.
Understanding Kluver-Bucy syndrome
Other signs include trouble visually recognizing objects, loss of normal fear and anger responses, memory loss, distractibility, seizures, and dementia. It is linked to damage to the anterior temporal lobes of the brain. Cases have been reported after herpes encephalitis and head injury.
Signs & symptoms
Symptoms vary from person to person. GARD's summary describes these features:
- Mouthing objects
- Inappropriate sexual behavior
- Trouble recognizing objects by sight
- Loss of normal fear and anger
- Memory loss
- Seizures
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is linked to damage to the front (anterior) part of the temporal lobes of the brain. Cases have been reported with herpes encephalitis and head trauma.
Also known as: klver-bucy syndrome; klüver-bucy syndrome
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Kluver-Bucy syndrome.
Explore research for Kluver-Bucy syndrome
Explore actively recruiting Kluver-Bucy syndrome studies with HealthSpark.
Find actively recruiting studies for Kluver-Bucy syndrome with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
Powered by HealthSpark, our AI chat helper
I can help you find recruiting Kluver-Bucy syndrome studies. Enter a ZIP code, address or city below and I'll look within 50 miles.
Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
Get Signals for Kluver-Bucy syndrome
Stay in the loop with community stories and updates from medical researchers.
Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Kluver-Bucy syndrome experiences more deeply and prepare for better conversations with your doctors and care team.
Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.