Skip to content
knowrare
HealthSignal
Your condition community

Living with Juvenile temporal arteritis

A rare condition in which a blood vessel at the temple becomes inflamed, often causing only a painless lump.

Understanding Juvenile temporal arteritis

Juvenile temporal arteritis is a rare form of vasculitis, inflammation of the blood vessels, that affects only the temporal arteries at the temples.

It is usually found in late childhood or early adulthood. Many people have no symptoms other than a painless lump in the temple area. Unlike the classic form of temporal arteritis, it affects only the temporal arteries. It usually occurs by chance in people with no family history.

Signs & symptoms

Symptoms vary from person to person. GARD lists these among the most common:

  • Painless lump (nodule) at the temple
  • Headache
  • Raised white blood cell count

Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.

Diagnosis

  1. Talk with your doctor

    Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.

  2. See a specialist

    Specialists who may be involved include autoimmune and inflammatory disease specialists.

  3. Ask which tests can help

    Your care team will decide which exams and tests can confirm the diagnosis.

  4. Connect with expert centers

    Vasculitis Foundation may keep lists of experts for this condition.

Care & treatment

Care team
autoimmune and inflammatory disease specialists (rheumatologists)
Expert care
Expert lists: Vasculitis Foundation
Treatment
GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
Research
Clinical trials and observational studies may be options. See the research section below.

General information, not medical advice. Your care team makes the decisions.

Everyday life

Living with a rare condition is easier with support.

  • Connect with Vasculitis Foundation
  • Keep notes on symptoms, changes and questions for appointments
  • Ask about patient registries that help research
  • Look into financial aid and travel resources for care visits
Bring these questions to your next doctor visit
How is this diagnosed, and is a biopsy of the lump needed?
Does this condition need treatment, or just monitoring?
How is it different from the temporal arteritis that older adults get?

Quick facts

Symptoms usually startChild

The exact cause is unknown. It generally occurs by chance (sporadically) in people with no family history of the condition.

Also known as: jta; non-giant cell granulomatous temporal arteritis with eosinophilia

Patient organizations

Source: NIH GARD · Juvenile temporal arteritisGARD ID 3068 · GARD page updated September 2026 · Plain-language summary by Know Rare; editorial review pending. General information, not medical advice.

You are more than your diagnosis

Perspectives from people navigating life with Juvenile temporal arteritis.

Explore the Juvenile temporal arteritis blog

Explore research for Juvenile temporal arteritis

Explore actively recruiting Juvenile temporal arteritis studies with HealthSpark.

HealthSpark

Find actively recruiting studies for Juvenile temporal arteritis with HealthSpark. Share your city to explore research near you.

  • Recruiting studies from ClinicalTrials.gov
  • Share your city to look for research near you
  • Eligibility is confirmed by the study team

Powered by HealthSpark, our AI chat helper

I can help you find recruiting Juvenile temporal arteritis studies. Enter a ZIP code, address or city below and I'll look within 50 miles.

Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.

Get Signals for Juvenile temporal arteritis

Stay in the loop with community stories and updates from medical researchers.

HealthStoryfor Juvenile temporal arteritis

Create a living journal that talks back

HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your Juvenile temporal arteritis experiences more deeply and prepare for better conversations with your doctors and care team.

Start your journal

Your journal is private. Sharing your story publicly is a separate choice, made with Share your story above.