Living with Juvenile paralysis agitans of Hunt
A condition with Parkinson-like symptoms that starts in the teens or earlier and progresses very slowly.
Understanding Juvenile paralysis agitans of Hunt
Symptoms include tremor, a mask-like face, slow movement, trouble speaking clearly, and stiffness. Progression is very slow. In childhood, walking changes (walking on the ball of the foot) and hand tremor may appear. Some people may later have finger dystonia and a fixed facial expression.
Signs & symptoms
Symptoms vary from person to person. GARD's summary describes these features:
- Tremor
- Mask-like face
- Slow movement (bradykinesia)
- Trouble speaking clearly (dysarthria)
- Stiffness (rigidity)
- Walking on the ball of the foot
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Parkinson & Movement Disorder Alliance may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Parkinson & Movement Disorder Alliance
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Michael J. Fox Foundation for Parkinson's Research and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: neostriatal syndrome; paleostriatal syndrome; pallidal atrophy; pallidal syndrome; paralysis agitans, juvenile, of hunt; parkinson disease, juvenile, of hunt
Patient organizations
- Michael J. Fox Foundation for Parkinson's ResearchJuvenile paralysis agitans of Hunt · United States
- Parkinson & Movement Disorder AllianceJuvenile paralysis agitans of Hunt · United States
You are more than your diagnosis
Perspectives from people navigating life with Juvenile paralysis agitans of Hunt.
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