Living with Juvenile myelomonocytic leukemia
A rare blood cancer of childhood in which certain white blood cells grow too much in the bone marrow and blood.
Understanding Juvenile myelomonocytic leukemia
It is a myelodysplastic/myeloproliferative neoplasm, in which granulocyte and monocyte cells build up in the bone marrow and blood. The leukemia cells can spread into tissues, most often the liver, spleen, lymph nodes, skin, and respiratory tract. It occurs in infants and children.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes where it can involve the body:
- Too many white blood cells in marrow and blood
- Involvement of the liver and spleen
- Involvement of lymph nodes
- Involvement of the skin
- Involvement of the respiratory tract
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include blood and bone marrow specialists and cancer specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Alex's Lemonade Stand Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Blood and bone marrow specialists (hematologists); Cancer specialists (oncologists)
- Expert care
- Expert lists: Alex's Lemonade Stand Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Alex's Lemonade Stand Foundation and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD lists autosomal dominant inheritance but does not describe a cause for this condition yet.
Also known as: jcml; jcml - juvenile chronic myeloid leukemia; jmml; juvenile chronic myelogenous leukaemia; juvenile chronic myelogenous leukemia; juvenile chronic myeloid leukaemia
Patient organizations
- Alex's Lemonade Stand FoundationJuvenile myelomonocytic leukemia · United States
- Blood Cancer UnitedBlood or bone marrow disease · United States
- HealthTree FoundationBlood or bone marrow disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Juvenile myelomonocytic leukemia.
Explore research for Juvenile myelomonocytic leukemia
Explore actively recruiting Juvenile myelomonocytic leukemia studies with HealthSpark.
Find actively recruiting studies for Juvenile myelomonocytic leukemia with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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