Living with ITP
Information, shared experiences and research connections for people living with immune thrombocytopenia and those who support them.
– Free to talk, no obligation.
Understanding ITP
Your immune system may destroy platelets, and your body may make fewer. ITP can be short term or last a year or longer.
Signs & symptoms
Some people have no symptoms.
- Easy bruising or tiny red spots
- Nosebleeds or bleeding gums
- Heavy menstrual bleeding
- Blood in urine or stool
- Tiredness
Tell your care team about new or changing symptoms.
Diagnosis
- 1Review symptoms and medical history
A clinician reviews your symptoms, medical history and family history.
- 2Check platelet levels with blood tests
Blood tests can include a complete blood count to measure platelets and a blood smear to examine blood cells.
- 3Check for other causes when needed
Other tests may help check for related conditions or other causes.
Care & treatment
- Monitoring
- Mild ITP may not need treatment.
- Treatment
- Medicines or procedures may help manage bleeding risk.
- Your plan
- Depends on your symptoms and platelet count.
Discuss benefits, risks and follow-up with your care team.
Everyday life
Keep notes on symptoms, changes and questions.
- Discuss activities that are right for you
- Check medicines and supplements with your clinician
- Agree on when to seek help and how often to check platelets
You are more than your diagnosis
Perspectives from people navigating life with ITP.
Explore research for ITP
Know Rare supports research in ITP. Our nurse team can walk you through it.
For studies Know Rare supports, a member of our nurse team can explain what taking part involves and answer your questions. There's no obligation.
- A phone or email conversation at a time that suits you
- We only contact you if you give permission below
- The study team confirms eligibility
From families we've supported
I cannot fail to thank them for the support they gave us. It was Know Rare that made the connection that brought us here and changed my daughter's life for the better.
Caregiver of a Rare Disease Child After my son's diagnosis, I had so many questions and didn't know where to turn to for answers... Know Rare provided incredible support by connecting us to the right specialists and local clinical trials.
Caregiver of a Rare Disease Child
Get Signals for ITP
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Create a living journal that talks back
HealthStory evolves private journaling with a living AI journal that talks back and asks thoughtful questions, helping you capture your ITP experiences more deeply and prepare for better conversations with your doctors and care team.
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