Living with Invasive non-typhoidal salmonellosis
A bacterial infection in which Salmonella spreads outside the gut, seen in people who also have HIV, malaria, or cancer.
Understanding Invasive non-typhoidal salmonellosis
It is caused by certain types of Salmonella enterica (non-typhoidal types). It happens in people who already have HIV, malaria, or a cancer (malignancy). People usually have fever, pale skin, and breathing signs such as cough and pneumonia. Stomach and bowel symptoms are not common. Sometimes abscesses in organs, septic shock, or meningitis occur. It can start at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD says people typically have:
- Fever
- Pale skin (pallor)
- Cough
- Fast breathing (tachypnea)
- Pneumonia
- Organ abscesses (sometimes)
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is caused by an infection with non-typhoidal types of Salmonella enterica that spreads beyond the intestines. It occurs in people with HIV, malaria, or cancer.
Also known as: ints (invasive non-typhoidal salmonella) disease; ints disease; invasive non-typhoidal salmonella disease
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Invasive non-typhoidal salmonellosis.
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