Living with Intrahepatic cholangiocarcinoma
A cancer that grows in the cells of the bile ducts, inside and outside the liver.
Understanding Intrahepatic cholangiocarcinoma
The terms cholangiocarcinoma and bile duct cancer are often used for the same condition.
Signs & symptoms
Symptoms vary from person to person. GARD lists these:
- Yellow skin and eyes (jaundice)
- Abdominal pain
- Fever
- Weight loss
- Weakness
- Itching
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Cholangiocarcinoma Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Cholangiocarcinoma Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Cholangiocarcinoma Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: cholangiocarcinoma of intrahepatic biliary tract; cholangiocarcinoma, intrahepatic, malignant; icc; intrahepatic bile duct cancer (cholangiocarcinoma); intrahepatic bile duct carcinoma; intrahepatic carcinoma of bile duct
Patient organizations
- Cholangiocarcinoma FoundationIntrahepatic cholangiocarcinoma · United States
You are more than your diagnosis
Perspectives from people navigating life with Intrahepatic cholangiocarcinoma.
Explore research for Intrahepatic cholangiocarcinoma
Explore actively recruiting Intrahepatic cholangiocarcinoma studies with HealthSpark.
Find actively recruiting studies for Intrahepatic cholangiocarcinoma with HealthSpark. Share your city to explore research near you.
- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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