Living with Intracranial berry aneurysm
A condition in which a weak spot in a brain artery bulges like a sac; it can run in families.
Understanding Intracranial berry aneurysm
It is suspected as familial when two or more close relatives are affected. An aneurysm may cause no symptoms for life, or it can rupture and cause bleeding around the brain (subarachnoid hemorrhage). People with the familial form are more likely to have more than one aneurysm and a higher chance of rupture.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Bulging brain artery (berry aneurysm)
- High blood pressure
- Mini stroke (transient ischemic attack)
- Narrowed, hardened arteries
- Bleeding around the brain (subarachnoid hemorrhage)
- Differences in the circle of Willis
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include brain and nervous system specialists and genetic specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- Brain and nervous system specialists (neurologists); Genetic specialists (geneticists)
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with The Aneurysm and AVM Foundation
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD lists autosomal dominant and autosomal recessive inheritance. It doesn't name a gene.
Also known as: aneurysm, intracranial berry; familial aneurysmal subarachnoid haemorrhage; familial aneurysmal subarachnoid hemorrhage; familial berry aneurysm; familial cerebral saccular aneurysm; familial intracranial saccular aneurysm
Patient organizations
- The Aneurysm and AVM FoundationIntracranial berry aneurysm · United States
You are more than your diagnosis
Perspectives from people navigating life with Intracranial berry aneurysm.
Explore research for Intracranial berry aneurysm
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- Eligibility is confirmed by the study team
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