Living with Intestinal lymphangiectasia
A digestive condition in which lymph vessels in the lining of the small intestine are enlarged.
Understanding Intestinal lymphangiectasia
It can start at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD says you may have:
- Diarrhea that comes and goes
- Nausea
- Vomiting
- Swelling in the arms or legs
- Belly discomfort
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include digestive system specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Lymphatic Education and Research Network may keep lists of experts for this condition.
Care & treatment
- Care team
- Digestive system specialists (gastroenterologists)
- Expert care
- Expert lists: Lymphatic Education and Research Network
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Lymphatic Education and Research Network
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD doesn't describe a cause for this condition yet.
Also known as: intestinal lymphangiectasia (disease); intestinal lymphangiectasis
Patient organizations
- Lymphatic Education and Research NetworkIntestinal lymphangiectasia · United States
You are more than your diagnosis
Perspectives from people navigating life with Intestinal lymphangiectasia.
Explore research for Intestinal lymphangiectasia
Explore actively recruiting Intestinal lymphangiectasia studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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