Living with Inflammatory linear verrucous epidermal nevus
A rare skin condition with itchy, wart-like bumps in streaks or swirls, usually present from birth or early childhood.
Understanding Inflammatory linear verrucous epidermal nevus
It causes small, wart-like bumps that may be skin-colored, brown, or red, lined up in streaks or swirls. Bumps can join into thicker patches that are red, itchy, and inflamed. It usually appears at birth or in early childhood, often on one side of the lower body, and is more common in females.
Signs & symptoms
Symptoms vary from person to person. GARD describes these:
- Small wart-like bumps
- Bumps lined up in streaks or swirls
- Thicker, red, inflamed patches (plaques)
- Itching
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include cancer specialists and skin, hair, and nail specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Foundation for Ichthyosis and Related Skin Types may keep lists of experts for this condition.
Care & treatment
- Care team
- Cancer specialists (oncologists); Skin, hair, and nail specialists (dermatologists)
- Expert care
- Expert lists: Foundation for Ichthyosis and Related Skin Types
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Foundation for Ichthyosis and Related Skin Types and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is caused by a genetic change that happens after conception. How this change leads to the skin findings is not well understood.
Also known as: ilven; ilven - inflammatory linear verrucous epidermal nevus
Patient organizations
- Foundation for Ichthyosis and Related Skin TypesInflammatory linear verrucous epidermal nevus · United States
- Nevus Outreach, Inc.Inflammatory linear verrucous epidermal nevus · United States
- Children's Skin Disease FoundationSkin diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Inflammatory linear verrucous epidermal nevus.
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