Living with Immunoglobulin G4-related sclerosing disease
A rare immune-related disease in adults that can affect many organs, including the pancreas and salivary glands.
Understanding Immunoglobulin G4-related sclerosing disease
It can cause inflammation of the pancreas, swelling in or around an organ, enlarged salivary glands, swollen lymph nodes, and skin changes. People may also have allergies or asthma. It usually begins in adulthood.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes:
- Inflamed pancreas
- Swelling in or around an organ
- Enlarged salivary glands
- Swollen lymph nodes
- Skin changes
- Allergies or asthma
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include autoimmune and inflammatory disease specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Global Autoimmune Institute and IgG4ward! may keep lists of experts for this condition.
Care & treatment
- Care team
- autoimmune and inflammatory disease specialists (rheumatologists)
- Expert care
- Expert lists: Global Autoimmune Institute, IgG4ward!
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Global Autoimmune Institute and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
GARD says the disease has no known cause.
Also known as: igg4-rd; igg4-related disease; igg4-related sclerosing disease; igg4-related systemic disease
Patient organizations
- Global Autoimmune InstituteImmunoglobulin G4-related sclerosing disease · United States
- IgG4ward!Immunoglobulin G4-related sclerosing disease · United States
You are more than your diagnosis
Perspectives from people navigating life with Immunoglobulin G4-related sclerosing disease.
Explore research for Immunoglobulin G4-related sclerosing disease
Explore actively recruiting Immunoglobulin G4-related sclerosing disease studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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