Living with Idiopathic membranous glomerulonephritis
A kidney disease in which the kidney's filters become inflamed and let protein leak into the urine.
Understanding Idiopathic membranous glomerulonephritis
When the filter lining (the glomerular basement membrane) thickens, large amounts of protein are lost in the urine. Symptoms develop gradually. It is usually seen in adults.
Signs & symptoms
Symptoms vary from person to person. GARD describes these:
- Swelling
- Tiredness (fatigue)
- Weight gain
- High blood pressure
- Large amounts of protein in the urine
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include kidney specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
NephCure Kidney International may keep lists of experts for this condition.
Care & treatment
- Care team
- Kidney specialists (nephrologists)
- Expert care
- Expert lists: NephCure Kidney International
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with NephCure Kidney International and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
In many cases the cause is not known. Some cases are linked to other conditions (lupus), infections (hepatitis B and C), cancer, or side effects of certain medications.
Also known as: membranous nephropathy - idiopathic; primary membranous glomerulonephritis; primary membranous nephropathy
Patient organizations
- NephCure Kidney InternationalIdiopathic membranous glomerulonephritis · United States
- National Kidney FoundationKidney diseases · United States
- Renal Support NetworkKidney diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Idiopathic membranous glomerulonephritis.
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