Living with Idiopathic acute eosinophilic pneumonia
A lung condition in which many eosinophils, a type of white blood cell, quickly build up in the lungs.
Understanding Idiopathic acute eosinophilic pneumonia
"Idiopathic" means the exact cause of the extra eosinophils is not known. Possible triggers include cigarette smoking, dust and smoke at work, and certain medications. Diagnosis generally involves a bronchoscopy and bronchoalveolar lavage (BAL).
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Fever
- Cough
- Chest pain
- Muscle aches (myalgia)
- Trouble breathing
- Abdominal pain
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Specialists who may be involved include lung and breathing specialists.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
American Partnership For Eosinophilic Disorders and Children's Interstitial Lung Disease Foundation may keep lists of experts for this condition.
Care & treatment
- Care team
- Lung and breathing specialists (pulmonologists)
- Expert care
- Expert lists: American Partnership For Eosinophilic Disorders, Children's Interstitial Lung Disease Foundation
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with American Partnership For Eosinophilic Disorders and other patient organizations
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
The exact cause is not known. GARD says possible triggers include cigarette smoking, workplace dust and smoke exposure, and certain medications.
Also known as: acute eosinophilic pneumonia; iaep; idiopathic acute eosinophilic pneumonitis; loeffler's pneumonia; loffler syndrome; loffler's syndrome
Patient organizations
- American Partnership For Eosinophilic DisordersIdiopathic acute eosinophilic pneumonia · United States
- Children's Interstitial Lung Disease FoundationIdiopathic acute eosinophilic pneumonia · United States
You are more than your diagnosis
Perspectives from people navigating life with Idiopathic acute eosinophilic pneumonia.
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