Living with Ichthyosis vulgaris
A common inherited skin condition that causes dry, scaly skin, usually starting in early childhood.
Understanding Ichthyosis vulgaris
It often begins in early childhood. It can be a nuisance, but it rarely affects overall health.
Signs & symptoms
GARD doesn't list specific symptoms for this condition yet. Its summary describes:
- Dry skin
- Scaly skin
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
- 4Connect with expert centers
Foundation for Ichthyosis and Related Skin Types may keep lists of experts for this condition.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Expert lists: Foundation for Ichthyosis and Related Skin Types
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with Foundation for Ichthyosis and Related Skin Types
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is passed down in families in an autosomal dominant pattern, which means one changed copy of the gene can be enough to have the condition.
Also known as: dominant ichthyosis vulgaris; ichthyosis simplex
Patient organizations
- Foundation for Ichthyosis and Related Skin TypesIchthyosis vulgaris · United States
You are more than your diagnosis
Perspectives from people navigating life with Ichthyosis vulgaris.
Explore research for Ichthyosis vulgaris
Explore actively recruiting Ichthyosis vulgaris studies with HealthSpark.
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- Recruiting studies from ClinicalTrials.gov
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- Eligibility is confirmed by the study team
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Powered by HealthSpark, our AI chat helper · Study information from ClinicalTrials.gov · Eligibility is confirmed by the study team.
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