Living with Hemorrhagic fever-renal syndrome
A rare illness spread by rodents that causes fever, body aches, kidney problems, and bleeding.
Understanding Hemorrhagic fever-renal syndrome
It can be serious. It causes high fever, tiredness, headache, muscle and joint pain, backache, and belly pain. It can affect the kidneys, with less urine, and cause bleeding in the body. It can occur at any time in life.
Signs & symptoms
Symptoms vary from person to person. GARD lists these among the most common:
- Fever and chills
- Headache
- Belly pain and back pain
- Sudden kidney injury
- Less urine than normal
- Blurred vision
Not everyone has every symptom. GARD's list comes from the Human Phenotype Ontology.
Diagnosis
- 1Talk with your doctor
Share the symptoms you've noticed, when they started and your family health history. Notes and photos can help.
- 2See a specialist
Your doctor may refer you to a specialist who knows rare conditions.
- 3Ask which tests can help
Your care team will decide which exams and tests can confirm the diagnosis.
Care & treatment
- Care team
- A doctor familiar with rare conditions, plus specialists as needed
- Expert care
- Ask about multidisciplinary care centers for rare conditions
- Treatment
- GARD doesn't list specific treatments for this condition. Your care team will tailor care to your symptoms.
- Research
- Clinical trials and observational studies may be options. See the research section below.
General information, not medical advice. Your care team makes the decisions.
Everyday life
Living with a rare condition is easier with support.
- Connect with rare disease patient organizations for support
- Keep notes on symptoms, changes and questions for appointments
- Ask about patient registries that help research
- Look into financial aid and travel resources for care visits
Quick facts
It is caused by Old World hantaviruses, which are spread by rodents. GARD doesn't describe other causes.
Also known as: hantavirosis; hantavirus fever; hemorrhagic fever with renal syndrome; hfrs - hemorrhagic fever with renal syndrome; puumala virus nephropathy
Patient organizations
Rare-disease groups that can help
- Global GenesRare Diseases · United States
- National Organization for Rare DisordersRare Diseases · United States
- Genetic AllianceRare Diseases · United States
- RARE FoundationRare Diseases · United States
You are more than your diagnosis
Perspectives from people navigating life with Hemorrhagic fever-renal syndrome.
Explore research for Hemorrhagic fever-renal syndrome
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- Recruiting studies from ClinicalTrials.gov
- Share your city to look for research near you
- Eligibility is confirmed by the study team
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